Showing posts with label psorphil. Show all posts
Showing posts with label psorphil. Show all posts

January 19, 2017

Unfolding Psoriasis in the Philippines: A Burden of Disease Survey

This survey aims to collect data from Filipinos living with psoriasis above 18 years old to better understand experiences in diagnosis, management, and quality of life impact. This survey is developed for the Psoriasis Philippines in collaboration with Philippine Dermatological Society and Philippine Rheumatology Association supported by Novartis. 

Specifically, the survey aims to: 

1. Understand the rational, personal and emotional impact of psoriasis; 
2. Quantify patient perspectives on clear skin achievability; and 
3. Provide evidence for the significant impact of psoriasis on individuals. 

The data will be used to raise awareness on psoriasis in the Philippines and to develop a policy paper for psoriasis treatment and support.

If you have psoriasis, please answer the survey. If you know someone who has psoriasis, please share this post.

Click here to answer the survey.




October 29, 2014

Living with Psoriasis: My Journey & World Psoriasis Day Experience

Living with psoriasis can be challenging, emotional, and life-changing. But it has also taught me resilience, gratitude, and the importance of raising awareness. Through my personal journey and participation in World Psoriasis Day events in the Philippines, I’ve learned that psoriasis is not contagious, and advocacy can truly make a difference. 

What is Psoriasis? 

Psoriasis is a chronic skin condition that causes red, scaly patches on the skin. It is not contagious and can affect anyone, regardless of family history. Some people experience mild symptoms, while others face severe flare-ups that impact daily life. Living with psoriasis often involves medical treatments, lifestyle adjustments, and emotional support. 

My Early Struggles with Psoriasis 

I was diagnosed with psoriasis during my fourth year of college. At first, it was mild, and I could live normally—wearing what I wanted and going about my daily life. But after giving birth to my son, the condition became severe, spreading all over my body. 

Before joining any support groups, I felt alone and frustrated. I tried topical medications, phototherapy, and other treatments, but progress was slow and expensive. There were times I felt depressed, wishing I could have normal skin again. 

Joining the Asian Psoriasis Club and the local PsorPhil group gave me hope. I realized I wasn’t alone—there were others who truly understood what I was going through. 

Celebrating World Psoriasis Day 

World Psoriasis Day, observed globally every year, is dedicated to raising awareness about psoriasis and psoriatic arthritis. The event aims to educate people, improve access to treatments, and reduce discrimination against those living with the condition. 

My First Fun Walk (2010)


In 2010, I joined the Fun Walk in Manila organized by PsorPhil. I wanted to show the world that psoriasis is not contagious and connect with others battling the same condition. It was my first step toward advocacy, and I left feeling empowered and supported.

Joining the Cause Again (2012) 


Two years later, I joined the World Psoriasis Day Fun Walk at Maysilo Circle, Mandaluyong City. This time, my husband and son accompanied me. We participated alongside doctors, sponsors, volunteers, and other supporters, all under the global theme “Put Psoriasis on the Agenda Now.” After the walk, we enjoyed games, activities, and even won the sack race with Asian PsorClub! These events are not just fun—they help build community and amplify awareness. 

World Psoriasis Day 2014


In 2014, I attended another World Psoriasis Day event at San Andres Complex. The celebration included: 

Free medical consultations with dermatologists and rheumatologists 
Health checks like blood pressure, sugar, cholesterol, BMI, and urinalysis 
Free medications (while supplies lasted) 
Fun activities, including cheering competitions, raffles, and a Zumba party 

Each year, these events reinforce the importance of advocacy, support, and education for people living with psoriasis. 

National Psoriasis Awareness in the Philippines 

Since 2011, the Philippines has observed National Psoriasis Awareness Week from October 23–29 via Presidential Proclamation. This initiative complements World Psoriasis Day by promoting education, reducing stigma, and increasing support for individuals with psoriasis. 

The International Federation of Psoriasis Associations (IFPA) also advocates worldwide for the 125 million people affected by psoriasis and psoriatic arthritis. Together, these efforts give patients a voice and encourage global awareness. 

Living with Psoriasis: My Message 

Psoriasis is more than just a skin condition—it affects confidence, mental health, and daily life. Yet, with family support, medical care, and strong advocacy communities like Asian PsorClub and PsorPhil, living with psoriasis becomes manageable. 

I hope my story inspires others to: 

Seek support and join psoriasis communities 
Participate in awareness events like World Psoriasis Day 
Remember that psoriasis is not contagious 

Through continued education and advocacy, we can build a more understanding world for people living with psoriasis.

October 23, 2012

P.L.A.N.E.T.

I was one of the lucky participants of P.L.A.N.E.T or Psoriasis Livelihood Assistance Network and Training. If you’ve been reading this blog, you know that I have psoriasis and I’m a member of PsorPhil group. One of the visions of PsorPhil is to help and support people with psoriasis. For your information, we have members who are unemployed, they were either terminated or can’t find a job because of their skin condition so it is PsorPhil aims to help members by providing livelihood assistance and training. PsorPhil hopes that this training can help them to earn.

I was able to attend the Basic Web Designing and Basic PC troubleshooting training at Hope Christian High School in Sta. Cruz, Manila last Oct. 13 and Oct. 20, 2012. It was a half-day training so don’t expect that I can do web design or troubleshoot computers already but at least I’ve learned the basics. I know and understand some html and css terminology and have tried to assemble and disassemble computers. I just hope there’s a continuation of this training.


This was the second livelihood assistance I’ve attended the first one was soap making, jewelry making and loadingbusiness.

If you have psoriasis, join our group here and register here.

Photos from PsorPhil group. 

July 27, 2011

Celebrities with Psoriasis


I always say that having psoriasis is not easy because once you have it you have to deal and live with it. Most people are not aware about this skin disorder and some people may not understand how difficult for us to live a normal life during our break out.

Some people dreams to have a fair complexion and willing to spend thousands just to have a smooth and white skin. But people with psoriasis like me spend thousands just to have a clear skin and free from psoriasis. I only have one wish, (for 3 years already) that someday I will be able to wear my shorts, skirt and swimwear again. Someday, I can wear anything that I want just like before and someday I will enjoy the beach and swimming pool without thinking that people might see the red patch on my skin.

That’s how conscious I am when I am not at home, I am afraid of what people might say and feel about me if they know that I have psoriasis. So I really understand these celebrities who have psoriasis and I am happy that they come out in the open to show the world that psoriasis is not contagious.

photo from google
CariDee English is the 2006 winner of "America's Next Top Model" – click here if you want to see her story and she even reveals some of her pictures.

photo from google

LeAnn Rimes, the two time Grammy Award winning singer and actress who have psoriasis since she was two years old. Her full story here.

photo from google

And the latest celebrity who was diagnosed with psoriasis is no other than Kim Kardashian. Click here for the latest news.


I do not have any idea if there are local celebrities who have psoriasis.

April 17, 2011

Beauty, Money, and Wellness: A Summer Retreat to Remember at Morong Star Beach Resort

Last April 2011, I had the wonderful opportunity to join the BMW (Beauty, Money, and Wellness) project organized by PsorPhil—a special initiative designed to help psoriasis patients regain their sense of wholeness, confidence, and well-being. Through workshops and lectures focused on beauty, financial literacy, and wellness management, the event aimed to empower participants to live more self-sufficient and fulfilling lives.

The BMW Experience

It was my first time joining BMW, and the event took place at the beautiful Morong Star Beach Resort and Hotel in Morong, Bataan. The whole-day activity was filled with engaging talks, hands-on demos, and relaxing moments by the beach. Participants came from different PsorClubs across the Philippines, including RITM, AHMC, JRRMMC, SLMC, EAMC, SCF, OM, MMC, UERMMC, PGH, USTH, and even PsorPhil members from Facebook. 


A Whole Day of Learning, Healing, and Connection 

The BMW project focuses on three important things — beauty, money, and wellness — all equally important in helping psoriasis patients regain their confidence and sense of self-worth. 

The schedule was packed, but it never felt overwhelming because every activity was done with so much warmth and energy. 

Beauty Talk – by Marj Platilla and Dra. Maf 
Money Talk – by Edwin De Guzman 
Motivational Talk – by John Brian Diamante 
Salad Making Demo – by Chef Arjun Binalla 
Livelihood Trainings and Demos – included soap making, jewelry making, and a loading business workshop 
Meditation Session – led by Kathy Tan 



The event also featured raffles, freebies, and lots of laughter. I didn’t win the raffle draw, but the experience itself was more than enough reward. The best part? The registration fee was only ₱325, made possible through the generosity of sponsors, moderators, and PsorPhil officers. 

How to Budget Your Money 

Budgeting isn’t easy — it’s a skill every mom (and really, every adult!) should learn so we don’t end up living paycheck to paycheck. During the BMW seminar, Edwin De Guzman shared practical and insightful tips on how to manage our finances better. His talk was simple, realistic, and very doable. Here are some of his best pieces of advice: 

1. Get the whole picture. 
Know exactly where your money goes. Awareness is the first step to taking control of your finances.

2. Record everything. 
Write down all your expenses — unexpected, annual, monthly, weekly, and even discretionary.

Unexpected expenses: home repairs, maintenance, and medical bills 
Annual or quarterly expenses: homeowners’ dues, license renewals, insurance, and property tax
Monthly expenses: bank loans, credit card payments, rent, utilities, internet, and cable 
Weekly expenses: groceries, personal care, child support, and transportation 
Discretionary expenses: books, entertainment, dining out, vacations, travel, and membership fees

3. Compute your total monthly expenses. 
Compare it with your income to see where you stand financially. 

4. If your expenses are higher than your income, make adjustments. 
Identify which areas you can cut back on or simplify. 

5. Review your budget worksheet regularly. 
Check for any errors or overlooked items, make corrections, and re-total. 

6. If expenses still exceed income, create new sources of income. 
As Edwin reminded us, “Do not wait for opportunities — create opportunities.”

7. Always keep savings for a rainy day. 
The ideal amount is equivalent to six months of your net income. 

8. Tithe or give back. 
Set aside at least 10% of your income to give back to God or support causes that matter to you. 

This part of the seminar was one of my favorites because it made me realize that money management isn’t about restriction — it’s about freedom. When you know where your money goes, you feel more confident and secure.

A Quick Look at Morong Star Beach Resort and Hotel 

Since it was my first time visiting Morong Star Beach Resort, I was pleasantly surprised at how big and lively the place was. It’s the kind of spot that’s perfect for retreats, company outings, and family getaways. 







The resort has both a beach and a swimming pool, plus tons of activities like a zip line, adventure park, fun carts, and even a live band at night. Sports lovers can enjoy basketball, volleyball, billiards, darts, chess, and table tennis. There’s always something to do, whether you’re in the mood to relax or play.

The food and drinks were okay, not exactly gourmet but satisfying enough after a full day of activities. The rooms were spacious, though the air-conditioning struggled to cool the entire space, especially in the heat of summer. Still, for its affordable rates, it’s a great option for those living nearby.

If you’re from Bataan, this resort is a good choice for a quick beach escape. But since I’m from the South, I might pick somewhere closer next time, like Laiya, Batangas. 

Morong Star Beach Resort and Hotel 
Panibatuhan, Morong, Bataan, Philippines 
Tel: +63 634-6216 Fax: +63 635-0307 
Email: info@morongstarbeach.com 
www.morongstarbeach.com 

Overall, my BMW Summer Retreat experience was something I’ll always treasure. It wasn’t just about beauty or money or wellness — it was about reconnecting with myself and realizing that healing goes beyond the skin. 

I met amazing people, learned new things, and went home feeling refreshed and inspired. Sometimes, all we need is a change of scenery, a few good talks, and the reminder that we are not alone in this journey.
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