Michi Photostory: psorclub

January 19, 2017

Unfolding Psoriasis in the Philippines: A Burden of Disease Survey

This survey aims to collect data from Filipinos living with psoriasis above 18 years old to better understand experiences in diagnosis, management, and quality of life impact. This survey is developed for the Psoriasis Philippines in collaboration with Philippine Dermatological Society and Philippine Rheumatology Association supported by Novartis.

Specifically, the survey aims to:

1. Understand the rational, personal and emotional impact of psoriasis;
2. Quantify patient perspectives on clear skin achievability; and
3. Provide evidence for the significant impact of psoriasis on individuals.

The data will be used to raise awareness on psoriasis in the Philippines and to develop a policy paper for psoriasis treatment and support.

If you have psoriasis, please answer the survey. If you know someone who has psoriasis, please share this post.

Click here to answer the survey.

October 23, 2012

P.L.A.N.E.T.

I was one of the lucky participants of P.L.A.N.E.T or Psoriasis Livelihood Assistance Network and Training. If you’ve been reading this blog, you know that I have psoriasis and I’m a member of PsorPhil group. One of the visions of PsorPhil is to help and support people with psoriasis. For your information, we have members who are unemployed, they were either terminated or can’t find a job because of their skin condition so it is PsorPhil aims to help members by providing livelihood assistance and training. PsorPhil hopes that this training can help them to earn.

I was able to attend the Basic Web Designing and Basic PC troubleshooting training at Hope Christian High School in Sta. Cruz, Manila last Oct. 13 and Oct. 20, 2012. It was a half-day training so don’t expect that I can do web design or troubleshoot computers already but at least I’ve learned the basics. I know and understand some html and css terminology and have tried to assemble and disassemble computers. I just hope there’s a continuation of this training.